“The patients were tired of waiting,” reacts a patient with Charcot’s disease

Loïc Résibois, 46, suffering from Charcot disease, is delighted with Emmanuel Macron’s announcements on Sunday on a bill for assisted dying.

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Nursing staff care for a patient at the end of life in a palliative care unit, illustrative photo.  (MARC OLLIVIER / MAXPPP)

After numerous consultations and a Citizens’ Convention, Emmanuel Macron announced a bill, from April, on assistance in dying for patients at the end of life, in an interview with the daily newspapers La Croix and Liberation. It may take the form of a lethal substance absorbed by the patient or administered by a third party but under strictly limited conditions. Loïc Résibois, 46, suffers from Charcot’s disease and he very favorably welcomes the prospect of this new law.

“My first reaction is already: Finally! Because we, the tens of thousands of French condemned patients, have been waiting for Emmanuel Macron to allow Parliament to take up this text for months”, exclaims Loïc Résibois. “For everyone, a seven-month gap isn’t much. But for us who are sentenced, seven months is enormous.” he emphasizes.

“Have a peaceful end of life”

“It will allow us, I hope, to find what we want when we are at the end of life, which is serenity. Because active assistance in dying, or rather ‘assisted dying ‘ according to the text. It’s not something that we sick people are going to rush towards. What we want is to live as long as possible and in the best possible conditions. But what we want is to live as long as possible and in the best possible conditions. ‘we also wish to have a peaceful end of life’specifies the man.

Loïc Résibois adds that “Knowing that a law finally allows us in France to not find ourselves in a situation where we are not yet dead but no longer completely alive is extremely important. Another reason for satisfaction for us all the same, it’s the timetable. The fact that it was presented to the Council of Ministers in April and a first reading in May, that, for us, is extremely important. Because, honestly, the patients were tired of waiting. “


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