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“1:15 p.m. on Saturday” meets Zoé Besmond de Senneville, an actress suffering from otosclerosis, a disease of the inner ear that is still little known, which causes a loss of hearing, even deafness.
This week, “1:15 p.m. on Saturday” (Twitter, #1:15 p.m.) offers the portrait of a young woman, Zoé Besmond de Senneville, actress, author and artist who fights against a disease that is still poorly known: otosclerosis, a disease of the bones of the ear whose renewal is not carried out not correctly. This pathology leads to hearing loss, even complete deafness.
On her 25th birthday, Zoé suffered her first seizure. The young woman first thought she had an ear infection. And then the ailments got worse, and the tinnitus arrived. Finally, the diagnosis was made: bilateral cochlear otosclerosis.
Beethoven’s disease
This disease, from which the composer Ludwig van Beethoven also suffered, causes a slow but progressive loss of hearing. From her pain, the young woman made a podcast, then a book, The diary of my ears (ed. Flammarion). It’s a success that made him want to say more, to tell his story.
From ENT appointments to choosing her hearing aids or swimming pool sessions that she loves, the “1:15 p.m. on Saturday” team followed her for a year in her battle against this invisible evil. .
A report by Claire Leisink, Benjamine Jeunehomme and Oktai Sengul.
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