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At 21, Marine Barnérias learned that she had multiple sclerosis. Her illness, she gave it a name, Rosy. And with her, she went on an adventure for 9 months on the other side of the world to make the most beautiful meeting: herself …
“Already, just that word, multiple sclerosis, it is not very pleasant! ” Marine, 28, lives with multiple sclerosis, an autoimmune disease that affects her central nervous system: “My own body attacks my nerves in the brain. “It was during a sporting event with her school that the disease broke out, seven years ago. That day, Marine temporarily lost her sight:”I couldn’t see on the ends, until I couldn’t see anything. “After several examinations, she learns that it is about multiple sclerosis.”It’s a disease that evolves over time, you never know what can happen. “
During a trip to New Zealand, Marine had a click and she decided to give a name to her illness, Rosy. “Over and over, in my brain, I said to myself: sclerosis, sclerosis, sclerosis, but it is not possible, sclerosis, it is too ugly “, she recalls. By naming it thus, Marine ensures better “cohabit“with his illness.”Rosy, she’s part of my life, we’re roommates’. For the moment, we get along pretty well, everything is fine, she still hasn’t stung me. (…) When we fight against things, when we are against everything, strangely enough it sticks to us even more to the skin. ”
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