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End of life: for a patient with Charcot disease, assisted dying brings “serenity”
A bill on assisted dying will be examined from May 27 in the National Assembly. Loïc Résibois, suffering from Charcot’s disease, wants the current law on the end of life to change.
Loïc Résibois, 46, suffers from Charcot’s disease, which is incurable. Diagnosed a year and a half ago, it paralyzes his muscles one by one. Illness broke the momentum of this former general intelligence police officer. “What I feel unable to bear is being permanently bedridden, only being able to move my eyes”assures the patient, who judges this “unworthy”. For seven months, he has wanted to change the law on the end of life by using social networks.
An estimated life expectancy of between three and five years
Emmanuel Macron’s announcement of a bill on assisted dying is a relief for him. “Knowing that, if I request it, I will be able to benefit from this assistance in dying, it is likely to bring me a lot of serenity”. To benefit from it, the patient’s vital prognosis must be committed in the short or medium term. A notion which is too vague according to Loïc Résibois. “The suffering can be unbearable years before the patient dies”, he explains. The life expectancy of a person with Charcot disease is estimated between three and five years.
