“We are going to take advantage of him and give him love. We will always support him and be there for him. “A few weeks ago, Audrey Imbeault and Éric Demers had the worst news that parents can have. Their little Felix, born on October 13, has mucolipidosis type 2, a degenerative genetic disease that causes severe global developmental delay. If population screening could also be introduced for it, its implementation is still slow today, the request having been made to the Ministry of Health and Social Services 18 months ago.
Félix was born at 35 weeks, and as soon as she saw him, Mme Imbeault knew he would be handicapped. “When the diagnosis was officially announced, a few weeks after his birth, my life was over. It’s the worst disease he can have,” said the mother in an interview with The Daily.