Posted
Update
On the occasion of the 35th edition of the Telethon, all the antennas of France Télévisions are mobilizing to collect donations in order to fight against rare diseases which affect 3 million people in France. Amber, 6 years old, fights against the disease, with an astonishing maturity.
The recess is short-lived for Ambre. After a few minutes in the yard, she leaves school and her classmates to join a hyper-motricienne. On the program: 40 minutes of exercise to become aware of your body and tone it. The 6-year-old girl suffers from spinal muscular atrophy type III, a rare genetic disorder that causes generalized muscle weakness. “She cannot walk too long distances, nor run”, explains the health professional.
Back in class, Ambre is followed by a companion for all the daily tasks. “She’s a beating little girl, anything she can do on her own, she does”, describes his companion Angélique Jaunet. The AFM-Telethon organizes this support at school by professionals.