A disease which mainly manifests itself before the age of 30, in young populations, and which affects between 0.5 and 2% of the world population. Vitiligo is far from rare, but some people are still unaware that people affected by depigmentation can undergo treatment, and that many doctors do not sufficiently inform patients about the solutions available to them. Indeed, our colleagues at France 3 Provence-Alpes-Côte d’Azur recall that a study carried out by Professor Passeron proves that 70% of doctors believe that there is no “nothing to do” when faced with a case of vitiligo. And yet, treatments for repigmentation exist.
Worse still, some people advise against exposure to the sun. However, according to the professor, UV-B rays are on the contrary part of the therapy. A personality can perfectly speak about this illness. Herself affected by vitiligo, Nathalie Simon has lived with it for 24 years. Asked by France 3the former windsurfing champion says she is lucky that the depigmentation “only” affects her hands and has not spread to the rest of her body.
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Nathalie Simon had difficulty coping with her vitiligo
Fortunately, she can count on the support of her daughter to make her smile again and allow her to accept her difference. “Some time ago, my daughter said to me: ‘I find it beautiful! It changes every day, it’s poetic'”she rejoiced before noting: “Today, young people no longer hesitate to show their difference. So I decided this year, while continuing to treat it, to tame, to love my vitiligo… and above all to help people who have it. suffer to find optimism!”.
However, during the first years, the former host ofIntercity Or Sacred Evening had a lot of difficulty coping with his illness. “Of course… This disease is very little known, so people look at you, ask you what it is, if it’s contagious…”she told our colleagues when they asked her if she had “particularly suffered from [son] vitiligo.” “It’s socially complicated! And when you do television, obviously, the views of others are very important”she continues before recalling: “In my shows, where I’m often in the open air, and even in the water, it was becoming more and more difficult to hide.” Today, she fully embraces her difference and has decided to show it on screen.
From, Nathalie Simon decided to take on a new fight and join forces with the professor to help doctors in their research. She also shares a lot of information with her subscribers on her Instagram account about vitiligo in order to help and inform people who suffer from it like her.
RF