Margot was born on January 5, 2009, she is growing normally, without any psychological or physical development problems.
At 5 years and a few months, she was suddenly prone to epileptic seizures which multiplied without any known treatment being able to stop them.
After a few months, she sank into a coma for 4 days.
When she wakes up, Margot no longer eats, speaks or moves.
In the following months, in conjunction with the CHU Necker in Paris, all the known examinations will be carried out. Scanner, MRI, EEG, search for genetic anomaly. Despite this, no satisfactory explanation is found to explain Margot’s vegetative state. No diagnosis will be made.
In 2015, faced with this incomprehensible situation, the medical profession accepted that Margot should receive treatment based on Chinese medicine.
After a few weeks of this personalized treatment, Margot’s condition improved, she was able to sit up on her own.
More than ever determined to fight, her mother transfers her to Reims where a specialist in neurology, recognized in her field, agrees to take charge of Margot in August 2015. Admitted to a rehabilitation center, Margot eats again and redo her first not.
But against all expectations, his condition suddenly deteriorated in September 2016.
At the beginning of 2017, Margot was hospitalized at the Reims University Hospital for 18 months. She was then 8 years old.
Despite this, Margot’s mother refuses to give up and nourishes the hope of having a diagnosis.
After much research, we consulted doctors in Germany. The diagnosis of Lyme disease was quickly made.
Then a treatment was proposed within the framework of a hospitalization in Germany.
The first difficulty will then be to have the medical profession and Social Security recognize the interest in having Margot treated outside our national borders.
The second difficulty will be to find the financing to allow Margot to be treated in Germany.
The initial hospitalization of 30 days is estimated at more than €25,000.
The Margot Pour La Vie association, created in November 2018
Margot is 10 years old, she has been sick for 6 years.
Back in France after 4 months of hospitalization that cost €90,000, Margot no longer has Lyme disease, nor any viral infection. Many supports from local and national personalities, anonymous people, well-known artists and companies enabled the association to raise €35,000 to help his parents finance his stay in Germany.
Although the treatment across the Rhine has allowed her to make progress both physically and psychologically and to regain a certain presence, Margot is still ill without a diagnosis. Currently, she is in an IME center 24/24 and 7/7 to allow her to evolve in an adapted framework.
Today, thanks to the association, the fight continues, for her and for all sick people without a diagnosis.
Testimonials: the program available in replay
Olivier Cattiaux receives Emmanuelle Thirouxmother of Margot and Brunosecretary of the MargotPourlaVie association.
A solidarity concert
The MargotPourlaVie association is organizing a solidarity concert on Tuesday April 5, 2022 at the Chemin Vert theater in Reims, from 7:30 p.m. Arno Saulmulti instrumentalist, and Fred Alban Ponthieuxguitarist.
Margotpourlavie website
Facebook page Margot For Life