“It was horrible, I really felt like I was going to die that day”, remembers Diane Wattrelos, this Monday, April 18, on France bleu Normandie. She remembers that night in September 2013, the day when her rare illness, cluster headache, turned her life into a daily suffering.
I feel like someone’s twisting a screwdriver at eye level
“We were with friends, it was an evening that started very wellshe continues. And that crisis was the start of everything, I haven’t had a single day without a crisis since that moment.” For 9 years, seizures have been very frequent for Diane, about ten a day.
The Euroise is fighting against “the disease of suicide” – also called like that so much it hurts – supported by her husband Xavier and his relatives. The numerous operations carried out by neurosurgeons have yielded nothing ; today she is undergoing treatment at the University Hospital of Rouen which allows the number of seizures to be slightly reduced.
154,000 followers on Instagram
Diane Wattrelos now works on Instagram. Through her highly followed account, she shares her daily life with her family to give voice and strength to other victims of this rare disease; but also to victims of endometriosis, which she also suffers from.
In his story, she highlights, on several occasions, the role of caregivers who allowed her “to survive”, then to overcome the hardshipsuntil today where she lives with her husband and two children in Pacy-sur-Eure.
“My Evils in color”, is published by Leduc editions (18 euros).