CNIL gives green light for the creation of a SOS Médecins health data center

The data from this platform financed by the federation’s doctors will be uploaded in real time during the “autumn”.

SOS Médecins data can now be used for research. The federation, which comprises 64 associations and 1,300 doctors, received the green light on Monday, September 2, from the National Commission for Information Technology and Civil Liberties (CNIL) to create a “health data warehouse (EDS)” in the service of research and innovation in this field. This system “will securely and confidentially consolidate data from millions of patients treated each year” within SOS Médecins, the federation rejoices in a press release. This will be the first EDS focused on unscheduled care and access to care, it continues.

If there are already health databases at the hospital level and a general practice health data warehouse (P4DP), “everything that is between primary care and the hospital, the acute care episode, patients who are wandering from care, who are out of treatment because they do not have a primary care physician for example, all of this, the data was not collected and SOS Médecins comes to fill this gap”, underlines the president of the Scientific Commission of SOS Médecins France, Céline Falco, quoted by AFP.

The SOS Médecins network carries out 1.4 million home visits per year and more than 3 million consultations per year at fixed points.

The initiative “will enable, starting this year, research and innovation projects to be carried out for the benefit of patients and access to care, including real-life studies”, said the president of SOS Médecins France, Jean-Christophe Masseron, quoted in the press release. Data which, according to Céline Falco, will “from the call taking with the reason for the call, the textual data that was entered at the call taking until the final resolution of the acute care episode”, she told AFP.

They have, she emphasizes, “above all, the aim is to participate in improving the practices of SOS Médecins and then to participate in improving health trajectories.” The data from this platform financed by the federation’s doctors will be sent in real time to the “autumn current”she adds.